Posts Categorized: MS News

‘Multiple sclerosis drugs should be offered earlier’

Source MS Society: People with the most common form of multiple sclerosis should be offered drug treatment earlier, a charity says. The Multiple Sclerosis Society’s report suggests there is a “wait-and-see” approach by doctors which needs to end. But drug watchdog NICE says while this “disease-modifying therapy” can help in some cases, the benefits need… Read more »

Take part in a survey and get a £15 Amazon gift card!

Invitation: Multiple Sclerosis Patient Survey Opinion Health, an independent research agency based in London, is currently inviting people diagnosed with multiple sclerosis to take part in an online survey. This survey is designed to provide a better understanding of your experience of the treatment you are receiving as well as your treatment preferences. The survey… Read more »

MS sufferers’ health damaged by benefits tests, survey finds

Source MS Society: Many multiple sclerosis sufferers required to undergo assessments to claim disability benefits are having their health damaged as a result, a survey suggests. The MS Society found that nearly half (48%) of people with the disease of the nervous system who had an assessment for Employment Support Allowance (ESA) felt the process… Read more »

Have your say on the NICE quality standard for MS

Source MS Trust: Calling all people with MS and health professionals! We need your help to shape our response to a consultation on the key areas for improving services for people with MS. Following the publication last year of the NICE Guideline for the management of MS in primary and secondary care (Clinical Guideline 186),… Read more »

Plegridy approved for NHS in Wales

Source MS Trust: Plegridy (peginterferon beta-1a) has been approved as a treatment for relapsing remitting multiple sclerosis on the NHS by the Welsh drug regulator the All Wales Medicines Strategy Group (AWMSG). Plegridy should be available on the Welsh NHS within three months, so neurologists should be able to prescribe it from late October 2015…. Read more »

Wheelchair services in England ‘are failing’

Source BBC: One of Great Britain’s most successful Paralympians has said wheelchair services across England are failing on every level. Baroness Tanni Grey-Thompson has launched a new national charter to improve services across the country.  Read on.

Progressive MS. Issue three (August/ September 2015)

My name is Ian Cook. I am a journalist with progressive MS from the UK who is writing a regular free ezine about progressive MS. Issue three (August/ September 2015) is attached.  I hope you find it interesting. In this issue are stories about trials for people with primary progressive and secondary progressive MS, some… Read more »

Asian MS Newsletter

A new Asian MS Newsletter has been produced, the editor is Trishna Bharadia. “Asian MS is a national support group for Asians with MS, their carers, friends and family. We seek to increase awareness and dispel ignorance of MS in the Asian community, as well as put fun and dignity into the lives of Asians… Read more »

Government must do more to improve neurological services, report shows

Source MS Society: A new report by the National Audit Office (NAO) has shown the government has made patchy progress in meeting objectives for improving services for people with neurological conditions. Progress was reviewed against recommendations made by the House of Commons Public Accounts Committee in 2012.  Read on.