The University of Sheffield has asked for volunteers to help with their research study. They asked a group of people with Multiple Sclerosis, and a group of healthcare professionals, about what they thought the contents and appearance of a fatigue management app should be. They would like to know how far you agree or disagree with the… Read more »
Posts Categorized: MS News
Having MS is enough. It shouldn’t be made harder by a welfare system that doesn’t make sense.
Source MS Society: “Welfare support is vital for many people with MS. It helps us manage the extra costs of the condition, stay in work for longer and participate fully in society.” “Yet our welfare system too often ignores invisible symptoms like pain and fatigue and fails to recognise how MS symptoms fluctuate.” The assessment… Read more »
Government to end unnecessary PIP reviews for people with most severe health conditions
Source Gov.UK: People with the most severe, life-long conditions will no longer have to attend regular reviews for Personal Independence Payment (PIP). New guidance coming into effect this summer means people who are awarded the highest level of support under PIP – and where their needs are expected to stay the same or increase – will receive an… Read more »
Valuing Goals Study
We are conducting a study to evaluate whether an online resource called ‘Valuing Goals’, which offers skills training in goal setting and action planning, can improve well-being for people with MS. I am contacting MSTCs to see if they would be willing to circulate an advert for the study to their membership for the opportunity… Read more »
The Agony of Decision-making when It’s Time to Switch MS Medications
Source Multiple Sclerosis News Today: I’m agonizing over an important decision and it’s driving me crazy. I’m usually a quick decision-maker, but this one is tough. I’m agonizing over an important decision and it’s driving me crazy. I’m usually a quick decision-maker, but this one is tough. I have my analytical hat on, trying to look… Read more »
Molecule Whose Fragments Appear to Block Myelin Repair Identified in Study
Source Multiple News Today: A molecule responsible for preventing the repair of white matter in the brain, a process critical to treating multiple sclerosis (MS) and cerebral palsy, has been identified. The research, “A TLR/AKT/FoxO3 immune-tolerance like pathway disrupts the repair capacity of oligodendrocyte progenitors,” was published in The Journal of Clinical Investigation. White matter in the brain’s white… Read more »
Volunteers needed for Royal Holloway University employment research study
Source Royal Holloway University: We are looking for volunteers with Relapsing Remitting MS to take part in a new study investigating the relationship between specific mental skills and employment in Multiple Sclerosis. We will be using a new, computer-based test which we hope will be able to produce information more closely related to real life… Read more »
Fingolimod may help prevent brain volume loss in Relapsing-Remitting Multiple Sclerosis
Source Neurology Advisor: In patients with relapsing-remitting multiple sclerosis (RRMS), fingolimod may protect against deep gray matter (dGM) and thalamus volume loss and may also lead to slower disability progression compared with placebo, according to an analysis published in Neurology. The investigators analyzed pooled data from the FTY720 Research Evaluating Effects of Daily Oral Therapy in Multiple Sclerosis FREEDOMS and FREEDOMS II phase… Read more »
New research shows excess myelin goes to the wrong part of nerve
Source MS Society: Researchers at the MS Society Edinburgh Centre for MS Research have found that extra myelin can be sent to the wrong part of the nerve – an important insight for MS treatments. Professor David Lyons and his team looked at what happens in zebrafish and mice when myelin making cells (known as oligodendrocytes) make more… Read more »
What causes MS?
Source MS Trust: The causes of MS are not well understood and there are a number of factors to be considered. You may wonder whether you did something to cause your MS or if you could have stopped MS from happening to you. The answer is ‘no’. No one could have advised you how to prevent… Read more »
