01235 832023
Source MS Trust:
Are you going sober for October? Alcohol can irritate the bladder, so reducing how much you drink may help you manage your MS bladder problems.
Around 75 per cent of people with MS experience bladder problems and these can have a big impact on your everyday life.
However, simple management strategies can really make a difference. Here are some top tips.
Source Multiple Sclerosis News Today:
A five-year study demonstrated that Sanofi-Genzyme’s Lemtrada (alemtuzumab) provides long-term benefits for relapsing-remitting multiple sclerosis patients, reducing relapse rates and preventing the progression of the disease.
Importantly, most patients required only the standard two-phase treatment course. Few needed additional courses because of relapse or new brain lesions. Read on.
Christmas Dinner, Wednesday 13th December at noon, Park Place Brasserie. The menu is at the centre. 3 courses £18, 2 courses £16 (including tip).
Source MS Trust:
How did you feel when you were diagnosed with MS? Angry? Scared? Perhaps even relieved? Whatever you felt, or are feeling now, it’s OK. There is no correct way to react to the news of diagnosis – being diagnosed with MS is a lot to take in. In this video, Anna talks candidly about the range of emotions she experienced after her MS diagnosis. Read on.
Source Multiple Sclerosis News Today:
Disarm Therapeutics has completed the first round of financing to develop a compound that prevents axonal degeneration in patients with multiple sclerosis (MS) and other neurodegenerative conditions.
The treatment approach is based on an earlier discovery at Washington University in St. Louis, showing that the enzyme SARM1 is a key driver of axon degeneration, a process that causes disability and progression in several diseases of the central, ocular, and peripheral nervous systems.
The discovery was published in the journal Neuron in March 2017. Researchers had earlier known that SARM1 was involved in the degeneration process, but thought that another, so-far unidentified enzyme was needed to perform key steps. Read on.
Source MS Trust:
Cognition and cognitive symptoms
About half of all people with multiple sclerosis have some degree of problem at some time with aspects of thinking – memory, attention span, planning, decision making, understanding or concentration. Cognition is the term that covers all these aspects and these symptoms are referred to as cognitive problems. Cognitive issues can arise early in the course of the condition, but the longer you have had MS the more likely problems are to occur.
For most people the symptoms are relatively mild and can fluctuate from day to day, so initially you may not recognise them as an aspect of your MS and put them down to other reasons such as stress, overwork, tiredness or just getting older. Cognitive issues can be made worse by other symptoms such as fatigue, anxiety, depression, or even some medications.
The most common cognitive problems experienced by people with MS are poor memory and trouble concentrating, which they often describe as ‘brain fog’ or ‘fuzziness’. Research suggests that cognitive symptoms usually stay the same over several years, or only very gradually worsen, giving you time to develop strategies to compensate for any difficulties. Read on.
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No 8, Jodie winning £36.25
No 21, Nandi winning £21.75
No 22, Jill winning £14.50
Come on everyone, join our 100 club, ask Sue or Dave for details only £5 a month.
West Hagbourne Village Association are having a Macmillan coffee morning on Saturday 30th September at York Farm, York Road, West Hagbourne from 10.30-12.30.
Source Multiple Sclerosis News Today:
I had always envisioned that I would be an active and healthy grandparent when the time came — not one with a disability. I was diagnosed with primary progressive multiple sclerosis (PPMS) in the summer of 2010, which also happened to be the same year my first grandchild was born.
I was ecstatic about being a grandma, yet apprehensive about how active I would be able to be. I also understood it meant that I might not be as helpful with the baby as I wanted to be. I would need to adapt my grandma skills to co-exist with my decreasing mobility and my increasing symptoms.
I am now blessed to have four beautiful grandchildren. They love me, and I, of course, love them. We play, use our imaginations, and I also sneak some learning in. It took time for me to get past my insecurities of feeling that my grandchildren were being shortchanged somehow in the grandma department. I had to work hard be able to move past my misguided feelings of inadequacy. It is not easy to be limited in a physical capacity while feeling as if you are not good enough. Read on.
