End to ESA reassessments comes into effect

Source MS Society:

From the 29th September, some people with MS won’t have to be re-tested for Employment and Support Allowance (ESA) after their next reassessment.

Last October the Government announced it would stop ESA reassessments for people with severe conditions who can’t work.

The Department of Work and Pensions (DWP) has confirmed this change will start from today. They’ve also provided more detail about who it will apply to.  Read on. 

PIP and ESA Assessments

Source Parliament UK:

As part of our inquiry on PIP and ESA Assessments, the Work and Pensions Committee would like to hear about your experience of claiming PIP or ESA.

Inquiry: PIP and ESA Assessments
Work and Pensions Committee

Get involved

The web forum closes on Friday 10 November 2017.

If you have had an assessment, or are waiting for an assessment, for PIP or ESA, we’d like to hear from you.

You might want to tell us about:

  • Did you feel that the right decision on your entitlement to ESA/PIP was reached as a result of your initial assessment?
  • If not—what do you feel were the reasons for this?
  • If you have experience of Mandatory Reconsideration, did you find this stage effective and useful? How might it be improved?
  • Overall, how “claimant-friendly” did you find the assessment process?
  • What steps would you recommend taking to improve it?

For more click here.

Tips for managing MS bladder problems

Source MS Trust:

Are you going sober for October? Alcohol can irritate the bladder, so reducing how much you drink may help you manage your MS bladder problems.

Around 75 per cent of people with MS experience bladder problems and these can have a big impact on your everyday life.

However, simple management strategies can really make a difference. Here are some top tips.

Long-term Lemtrada Treatment Benefits Demonstrated in Extension Study

Source Multiple Sclerosis News Today:

A five-year study demonstrated that Sanofi-Genzyme’s Lemtrada (alemtuzumab) provides long-term benefits for relapsing-remitting multiple sclerosis patients, reducing relapse rates and preventing the progression of the disease.

Importantly, most patients required only the standard two-phase treatment course. Few needed additional courses because of relapse or new brain lesions.  Read on.

Date for your diary

Christmas Dinner,  Wednesday 13th December at noon, Park Place Brasserie.  The menu is at the centre. 3 courses £18, 2 courses £16 (including tip).

How did you feel when you were diagnosed with MS?

Source MS Trust:

How did you feel when you were diagnosed with MS? Angry? Scared? Perhaps even relieved? Whatever you felt, or are feeling now, it’s OK. There is no correct way to react to the news of diagnosis – being diagnosed with MS is a lot to take in. In this video, Anna talks candidly about the range of emotions she experienced after her MS diagnosis.  Read on.

Disarm Therapeutics to Begin Developing Therapy that Prevents Axonal Degeneration

Source Multiple Sclerosis News Today:

Disarm Therapeutics has completed the first round of financing to develop a compound that prevents axonal degeneration in patients with multiple sclerosis (MS) and other neurodegenerative conditions.

The treatment approach is based on an earlier discovery at Washington University in St. Louis, showing that the enzyme SARM1 is a key driver of axon degeneration, a process that causes disability and progression in several diseases of the central, ocular, and peripheral nervous systems.

The discovery was published in the journal Neuron in March 2017. Researchers had earlier known that SARM1 was involved in the degeneration process, but thought that another, so-far unidentified enzyme was needed to perform key steps.  Read on. 

Got cog fog?

Source MS Trust:

Cognition and cognitive symptoms

About half of all people with multiple sclerosis have some degree of problem at some time with aspects of thinking – memory, attention span, planning, decision making, understanding or concentration. Cognition is the term that covers all these aspects and these symptoms are referred to as cognitive problems. Cognitive issues can arise early in the course of the condition, but the longer you have had MS the more likely problems are to occur.

For most people the symptoms are relatively mild and can fluctuate from day to day, so initially you may not recognise them as an aspect of your MS and put them down to other reasons such as stress, overwork, tiredness or just getting older. Cognitive issues can be made worse by other symptoms such as fatigue, anxiety, depression, or even some medications.

The most common cognitive problems experienced by people with MS are poor memory and trouble concentrating, which they often describe as ‘brain fog’ or ‘fuzziness’. Research suggests that cognitive symptoms usually stay the same over several years, or only very gradually worsen, giving you time to develop strategies to compensate for any difficulties.  Read on.

Autumn news from Generation Games/Age UK Oxfordshire

Dear readers,

We hope you have all had an enjoyable summer break. Now our classes have all started back again and we also have a few new ones to tell you about!
Our Strength & Balance classes are going from strength to strength (no pun intended!) and we currently have 10 across the county. We are also training more instructors this autumn so that we have even more classes. A lady who goes to one of our Strength & Balance classes told us “My balance has improved. It is good to come out and to meet people. It is motivating to exercise as a group”.

Today, Monday 25th, a new Strength & Balance class started in Goring at Storton Lodge. This class will take place every Monday during term-time at 10.30 am. It is already proving fairly popular so please let us know if you would like to attend.

The other very exciting news is that we launched our brand new Big Bold and Balance – Parkinson’s exercise DVD at the Parkinson 200 conference last Monday in Oxford. If you are living with PD and live in Oxfordshire, please get in touch and we will be happy to send you a complimentary copy.

For further information on the Parkinson’s UK Oxford branch please follow the following link Parkinson’s UK Oxford and District branch

Strength & Balance – falls prevention classes in Oxfordshire
Some of our newer classes this term are

Cherwell Holly Tree, Deddington Creative Moves (dementia friendly) Monday* (except 2nd Mon in month) 2 – 3pm
Cherwell Bicester Methodist Church Strength & Balance – Falls Prevention Monday 1.30 – 2.30pm
City Rose Hill Community Centre Balance & Bone Monday 10.30 – 11.30am
City Jericho Community Centre Strength & Balance – Falls Prevention Friday 10.30 – 11.30am
City Marston Scout Hut Strength & Balance – Falls Prevention Thursday 11 – 12pm
South Long Wittenham Village Hall Strength & Balance – Falls Prevention Wednesday 3.30 – 4.30pm
South Storton Lodge, Goring Strength & Balance – Falls Prevention Monday 10.30 – 11.30am
South St Joseph’s Catholic Church, Thame Chair based Tuesday 12 – 1pm
Vale Grove Village Hall Strength & Balance- Falls Prevention Monday 4.30 – 5.30 (new time!)
West Fernleigh, Buttercross Lane, Witney, OX28 4DZ Creative Moves (dementia friendly) Tuesday 10.30am – 11.30am
Do you know a care worker or service who is giving outstanding care? 

Age UK Oxfordshire are looking for nominations of organisations, businesses, care settings, public services, paid staff and volunteers who have gone that extra mile to deliver real dignity in care in Oxfordshire.
There are seven categories including our new ‘Inspiration Award’ which is for an organisation or business which goes out of its way to deliver care to its service users and customers. It might be an organisation that would not traditionally be associated with a care giving role, yet makes people in its community feel supported in their day to day life.Nominations for the Dignity in Care Awards close on the 2nd October. Don’t miss the opportunity to spotlight outstanding care in Oxfordshire.

For further information, and to nominate online, visit our website. Follow this link Dignity in Care

September 100 club winners

 

No 8, Jodie winning £36.25

No 21, Nandi winning £21.75

No 22, Jill winning £14.50

Come on everyone, join our 100 club, ask Sue or Dave for details only £5 a month.