|
MEPC’s Development Manager, Miles Jones running the London Marathon for MS Therapy Centre
MEPC’s Development Manager, Miles Jones running the London Marathon for MS Therapy Centre
For this year’s London Marathon on 22nd April 2018, Miles Jones is raising money for Milton Park’s resident and nominated charity: MS Therapy Centre. To kick start his training, Miles is using his commute to and from work to help.
To help Miles and Milton Park reach the £1,500 target for MS Therapy Centre you can make donations at his virginmoney page:
https://uk.virginmoneygiving.com/MiltonPark
MEPC will be giving updates of Miles’ journey on social media and on the website.
MEPC’s Development Manager, Miles Jones running the London Marathon for MS Therapy Centre
For this year’s London Marathon on 22nd April 2018, Miles Jones is raising money for Milton Park’s resident and nominated charity: MS Therapy Centre. To kick start his training, Miles is using his commute to and from work to help.
To help Miles and Milton Park reach the £1,500 target for MS Therapy Centre you can make donations at his virginmoney page:
https://uk.virginmoneygiving.com/MiltonPark
MEPC will be giving updates of Miles’ journey on social media and on the website.
Be kind to your mind
We often focus solely on our physical health but looking after our mental health is also vital to our sense of wellbeing. Jo Johnson, a consultant neuropsychologist with a special interest in MS, introduces practical steps you can take to improve and maintain your mental wellbeing.
“Most of us spend a lot of time caught up in our heads – regretting the past, fearing the future or just trying to manage the challenges of the day. Getting hooked up into our heads causes stress but it also can mean that many moments of pleasure pass by unnoticed because we aren’t paying attention” Find out more here.
Ocrelizumab licensed for people with early primary progressive MS in the UK
Ocrelizumab has been approved as the first licensed treatment for some people with primary progressive MS in the UK.
Recently recommended by the European Medicines Agency (EMA), today the European Commission approved the licence.
UK regulators will now decide whether ocrelizumab should be available on the NHS.
Who can get ocrelizumab?
- The conditions of the licence mean ocrelizumab (brand name Ocrevus) can only be prescribed for people with early primary progressive MS. This means:
- people who have evidence of inflammatory activity identified through an MRI scan
- Other factors that will be taken into consideration are:
- how long they’ve lived with MS symptoms
- their level of disability
Read more here.
From Thursday 1st February ALL oxygen sessions will start at 10.30am
European Commission Approves Ocrevus to Treat RRMS, PPMS Throughout EU
European Commission Approves Ocrevus to Treat RRMS, PPMS Throughout EU
MS-UK Telephone Counselling Service
MS-UK Telephone Counselling Service MS-UK Counselling was established following consultation with people who had multiple sclerosis (MS), who said that a counselling service would be their choice as a new service.
Conversations with clients have already shown that they do not want to feel a burden to their friends or families by talking to them about their MS. They value speaking not only with counsellors but also with counsellors who have specialised MS training.
Since launching our service in October 2017, we have seen a great deal of interest, and clients are already starting to tell us of the benefit that counselling is having on their lives. There is no fixed fee to access the service. However, any contributions towards sessions will help sustain the service in the long term. MS-UK Counselling is open to people aged 18 or over who have a diagnosis of MS. It is the only service of its kind available in the UK. Sessions are delivered over the telephone, making the service accessible to all. Counsellors do not give advice but help people to explore their experiences so that they can find their own way forward.
Our counselling service is focussed on helping people understand themselves in light of their MS and explore its emotional impact on their lives. MS-UK counsellors are BACP registered or accredited with knowledge of MS and its impact on mental wellbeing. There is an initial 45 minute assessment session, followed by weekly sessions which last 50 minutes. Each client is guaranteed six sessions but could receive further sessions if circumstances allow. People living with MS can register for the service individually or they can ask a health professional to make a referral. Further information is available on our website at www.ms-uk.org/counselling where referral forms can be downloaded or completed online.
If you have any questions or would like leaflets to be sent to your centre, please email us at counselling@ms-uk.org.
The Songbirds tea party in aid of the centre is fast approaching
UTI article
Miranda is an MS Specialist Nurse based in Bedford, she writes a blog to share things she has found good, useful or positive within the MS community.
UTI’s can be a common issue for many people with MS, this interesting article can help you to stay one step ahead. Read on.
Need help with: PIP application? Disabled badge? Appeal? Allowances?
Please click for: