Linda Tierney, Sarah Chapell, Nandi Ablett, winning a share of £95 between them.
You have got to be in it to win it! Ask Reception for details……
Daclizumab withdrawn from NHS after safety concerns
Source MS Society:
Disease modifying therapy daclizumab (Zinbryta) has been withdrawn from sale worldwide. Its manufacturers took the decision after reports that a number of people taking the treatment developed serious inflammatory brain disorders.
Daclizumab will no longer be available on the NHS. All clinical trials involving the treatment will be stopped. Read on.
HSCT works for people with relapsing MS who don’t respond to existing DMTs
Source BBC:
Doctors say a stem cell transplant could be a “game changer” for many patients with multiple sclerosis.
Results from an international trial show that it was able to stop the disease and improve symptoms. It involves wiping out a patient’s immune system using cancer drugs and then rebooting it with a stem cell transplant.
Louise Willetts, 36, from Rotherham, is now symptom-free and told me: “It feels like a miracle.”
A total of 100,000 people in the UK have MS, which attacks nerves in the brain and spinal cord. Just over 100 patients took part in the trial, in hospitals in Chicago, Sheffield, Uppsala in Sweden and Sao Paulo in Brazil. They all had relapsing-remitting MS – where attacks or relapses are followed by periods of remission.
The interim results were released at the annual meeting of the European Society for Bone and Marrow Transplantation in Lisbon. Read on.
MS drug hope
Source BBC: MS drug hope for secondary-progressive stage. A study of a new drug to treat advanced cases of multiple sclerosis suggests it may be possible to delay progression of the disease in the short term, although the effects were small.
n a trial of 1,327 people, in The Lancet, 26% saw their disability worsen after three months taking siponimod compared with 32% taking a dummy drug.
No drugs currently exist for secondary-progressive multiple sclerosis.
An MS expert expressed caution, saying other new treatments were still needed.
About 100,000 people in the UK have MS – a lifelong, progressive condition. Most are diagnosed between the ages of 20 and 70. Read on.
Caroline Wyatt – My quest to stop MS in its tracks
Source BBC: A year on from gruelling stem cell treatment for her multiple sclerosis, BBC correspondent Caroline Wyatt reveals what effect the potentially life-changing “reboot” of her immune system has had on her life.
The results of an international trial show stem cell transplants can vastly improve the lives of some people with multiple sclerosis.
The gruelling treatment involves wiping out a patient’s faulty immune system with drugs used to treat cancer – and then rebuilding it using stem cell transplants.
The BBC’s Caroline Wyatt, who was deemed unsuitable for a trial in the UK, paid for a stem cell transplant in Mexico. Read her story here.
Cakes needed
Cakes needed for our annual cake sale on Milton Park. Home-made and bought please. Any volunteers to help on the day would be much appreciated. Friday 11th May at lunchtime…… Pick up a small slip at the centre…
Easter Egg raffle winners:
Steve Lewis and Joanna Fielden
Happy Easter
MS Nurse – appointments available to book in April
Sue Barnden is coming to the Centre on Thursday 12th. She is available from 10am for half or one hour appointments (depending on what you think you need). She is here until 3pm. Speak to Sue or reception to make your appointment.
Spring News
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Disabled Access Day
Please find attached a poster advertising activities available at 2 of our sites for Disability access weekend free of charge
