Volunteers needed for Royal Holloway University employment research study
Source Royal Holloway University: We are looking for volunteers with Relapsing Remitting MS to take part in a new study investigating the relationship between specific mental skills and 
employment in Multiple Sclerosis. We will be using a new, computer-based test which we hope will be able to produce information more closely related to real life experiences.
You will complete a series of neuropsychological tests and questionnaires which should take no more than 2 hours. We will be arranging a suitable location for testing.
If you are interested and would like more information, please take a stub below and contact the researcher, Laura Clemens, Trainee Clinical Psychologist, who will give you an information leaflet and discuss the study in detail. For more information email Laura.
Fingolimod may help prevent brain volume loss in Relapsing-Remitting Multiple Sclerosis
Source Neurology Advisor: In patients with relapsing-remitting multiple sclerosis (RRMS), fingolimod may protect against deep gray matter (dGM) and thalamus volume loss and may also lead
to slower disability progression compared with placebo, according to an analysis published in Neurology.
The investigators analyzed pooled data from the FTY720 Research Evaluating Effects of Daily Oral Therapy in Multiple Sclerosis FREEDOMS and FREEDOMS II phase 3 trials, using data from the fingolimod program. In the pooled analysis, a total of 2064 participants with RRMS received 0.5 mg fingolimod (n=783), 1.25 mg fingolimod, or placebo (n=773). At 12 and 24 months, the investigators evaluated baseline changes in dGM and thalamic volumes. White matter and ventricular volume changes were also evaluated. Read on.
New research shows excess myelin goes to the wrong part of nerve
Source MS Society: Researchers at the MS Society Edinburgh Centre for MS Research have found that extra myelin can be sent to the wrong part of the nerve – an important insight for MS 
treatments.
Professor David Lyons and his team looked at what happens in zebrafish and mice when myelin making cells (known as oligodendrocytes) make more myelin than the nerve fibres need.
Too much of a good thing?
Professor Lyons, MS researcher at the University of Edinburgh and lead author, said: “We were surprised to find that when more oligodendrocytes and myelin were present than the nerve fibre needed, the excess myelin was sent to the wrong part of the nerve.”
It’s important to consider where extra myelin ends up because treatments for MS often involve increasing myelin production to repair damage done to nerve fibres. Read on.
What causes MS?
Source MS Trust: The causes of MS are not well understood and there are a number of factors to be considered. You may wonder whether you did something to cause your MS or if you could have 
stopped MS from happening to you. The answer is ‘no’. No one could have advised you how to prevent your MS.
The cause of MS is a very active area of research and it seems likely that a number of different factors come together to trigger MS. Some of these factors are in the world around us and there is some evidence that lack of sunshine may play a part. Other possibilities include being exposed to certain common viruses and carrying certain genes. However, no one knows for certain. Read on.
Flying disabled: Trouble in the skies
Source BBC: Disabled passengers: ‘Don’t even think about going to the toilet’
Wheelchair user Jemma Collins recalls how her dream holiday ended in bruises and humiliation when she was manhandled off a plane.
Campaigner Christopher Wood, who has two disabled children, is lobbying airlines to create a wheelchair space on aircraft. Watch here.
Why disabled people can’t afford to #DeleteFacebook
Source The Guardian: Revelations about internet companies being negligent with our data have prompted a backlash against social media, but for many people in marginalised groups these 
networks are a vital lifeline
It’s 10.32 on a Friday night and I am staring at the glow of my iPhone screen. It is almost three hours since I checked in to social media. It is also more than two months since I left the house. After falling ill with flu complications in January, I have been at home recovering, too ill to go outside or even to have visitors. Everyday social interactions – going to the pub with friends or chatting in the office – have become phantoms, replaced by four walls and my (disappointingly dull) inner monologue.
Instead, I have turned to the internet: browsing “wish you were here” photos on Instagram; reading the details of a friend’s week on Facebook Messenger; keeping up with news on Twitter; receiving “get well” emojis on WhatsApp. When it comes to my mental health, social media has been invaluable. Read on.
MS-UK Counselling Leafet
Please click on the following link:-
12 Month Challenge – Daisy Harris
Daisy Harris is doing 12 runs from this April until April 2019 in memory of her Mother. Raising money for the Centre over the year. She has already done her first challenge earlier in the month.
Her fundraising page link is as follows: https://uk.
Here is the link to her blog if you wish to keep updated on her activities: www.
Miles to run London Marathon for MS Therapy
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| On 22nd April 2018, MEPC’s Development Manager – Miles Jones – is running the London Marathon to raise money and awareness for the MS Therapy Centre, based at Milton Park. Join us in cheering him along, show your support and donate to raise money for this great charity. | ||
| The Oxfordshire MS Therapy Centre provide affordable and accessible therapy sessions, as well as information and a support system for those suffering with MS. They have been a long term occupier at Milton Park and have been a nominated charity of ours for many years now. | ||
| Miles’ training is in full swing with only 7 weeks to go!
To show your support – help Miles and Milton Park to reach their fundraising target of £1500! Donations can be made here. Thank you in advance for your kindness and generosity. Join us in cheering Miles along and watch this space for more information. The Milton Park Team |
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| www.miltonpark.co.uk | ||
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