Many thanks to Dave, Russ, John M, Sarah D, Maggie, John & Angela, Gloria, Andy & Julia, Liz & Ronnie, Brenda & Geoff for giving up their time on Friday and Saturday to collect at Tesco Extra Abingdon. A great total was raised: £945.69, so a massive thank you to all of you.
Attention, concentration and fatigue in long-term conditions study
Attention, concentration and fatigue in long-term conditions study: Participants who attend the testing session in London will be
paid £20.00
Do you have a long-term condition such as multiple sclerosis or cancer?
- People with these conditions often report high levels of fatigue and difficulties with attention and concentration.
- This research is interested in understanding these issues further.
You can take part in this study if:
- You have a diagnosis of a long-term condition from a hospital doctor
- You are at least 18 years old
Interested? If you would like to find out more about this study please contact the team by email or call 0207 188 0192 or Noemi on 07599 055934
Remap – making things possible, custom made equipment provided free of charge.
Source Remap: Remap is a national charity that works through local groups of skilled volunteers. We help disabled people achieve
independence and a better quality of life by designing and making equipment for their individual needs. This tailor-made equipment helps people to carry out essential daily tasks without having to ask for help, or helps them take part in leisure occupations or sports that would otherwise be impossible.
Our focus at Remap is to give people independence because we know how important this is. Many people have a physical impairment of some sort. But your life changes if you have to rely on others all the time. By making a piece of equipment specifically for an individual, tailored to their needs, we can often help them become that bit more independent.
Remap gives disabled people the joy of independence. Find out more here.
Do you or your partner have MS? Would you like to help design an app to help people with MS manage fatigue?
The University of Sheffield has asked for volunteers to help with their research study. They asked a group of people with Multiple 
Sclerosis, and a group of healthcare professionals, about what they thought the contents and appearance of a fatigue management app should be. They would like to know how far you agree or disagree with the things they said.
You can take part in this research if you are:
- Someone living with Multiple Sclerosis (MS), or someone experiencing MS-like symptoms, regardless of whether or not you have received a diagnosis.
- You have a partner who has MS
- You are a professional who works with people with MS
You must be over 18 to take part in this research.
Dates for your dairies
Dates for your dairies:
Friday 12th October – MS Quiz Night, Conservative Club, Didcot
Sunday 18th November – Harwell Xmas Craft Fair (half proceeds to the centre)
Saturday 15th December and Thursday 20th December – Steventon Choral Society, Steventon Village Hall
Further details nearer the time…
Winners of the World Cup Football Sweepstake
France – Bob Nex won £25
Croatia – Trish Knight (physio) won £15
Well done
PIP Application help available
Milton Park Newsletter – June 2018
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Volunteers needed
We really are in need of volunteers to help collect at Tesco Abingdon (big one) on Friday 20th and Saturday 21st July. Do you have 1.5hrs you can spare? Please contact Sue.
GDPR
As you are probably aware, the law on how companies collect, manage and use personal data changed on 25th May 2018 when the General Data Protection Regulation (GDPR) came into force. As you are one of our members who access our services, we need to comply with this. To keep things simple, we’ve updated our privacy Information Notice, which sets out how we handle the information we get from you. The changes make it easier for you to find out how we use and protect your information. Along with the Privacy Information Notice a Data Security policy has also been drawn up.
If you have any questions or queries please speak to Sue Doran, Centre Manager.
