MS Together

MS Together is an organisation which provides advice and support to people affected by MS, with a particular focus on those living with MS aged 18-35.

They provide an online community through private Facebook groups and enable connections to be made through their peer to peer support service. They also organise a number of different virtual and in person events, and empower people to share their stories, advocate for themselves and live their best lives.

To find out more, visit the MS Together website or MS Together Facebook page

Menopause and MS: MS Society webinar, 17 October

This session will provide you with information and guidance on how the menopause may affect you, as there are a vast range of symptoms associated with it. It will also provide you with what options you have for managing your menopausal and MS symptoms. There will be time at the end for questions.

Date: Tuesday 17 October

Time: 6.30pm to 7.30pm

Click here to book your space

This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website

Donations please – help make it a Luxury Hamper you want to win!

Donations please – help make it a Luxury Hamper you want to win!

(All donations need a good shelf-life date please)

If you are able to, please put your name against one of these items and bring to centre when you can, but before Thurs 14th December.  Raffle takes place at the Christmas lunch on Monday 18th December.  This form will be kept in Reception, so if you could email Sue or let us know when you are in, we can put your name against the item.  

ITEM NAME ITEM NAME 
WINE  SUE!WINE   
SMALL SPIRITS/ LIQUEUR  SMALL PROSECCO   
CHOCOLATES  AFTER DINNER MINTS   
CHRISTMAS BISCUITS  SHORTBREAD   
CHRISTMAS PUDDING  MINCE PIES   
SAVOURY NIBBLES  ASSORTED NUTS   
CHEESE BISCUITS  SPECIAL CHEESES   
LUXURY PRESERVE/JAM  SEASONAL CHUTNEY  
TINNED HAM   TINNED SALMON  
LUXURY TEA   PETIT FOURS  

Pain and MS: MS Society webinar, 21 September

Some people with MS may experience pain and it can be the most difficult invisible symptom to describe and manage. Pain may be caused directly, due to nerve damage, or indirectly, due to other MS symptoms. It can cause feelings of overwhelm, frustration and can impact your emotions and wellbeing.

The seminar will be joined by Dr Sam Chong, Consultant Neurologist at the National Hospitals Neurology and Neurosurgery, London. His research had a focus on nerve regeneration and nerve damage and he was on the UK NICE Guideline Development Group for Management of Headaches and Neuropathic Pain. 

Date: Thursday 21 September 2023

Time: 6.30pm to 7.30pm

Click here to book your space

You can also sign up for an informal Conversation Cafe session about MS and pain on Monday 25 September at 6pm. Your chance to chat to other people with MS. Sign up here.

This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk

Heat health alert issued for England

A heat-health alert has been issued for most parts of England as temperatures could reach 32C midweek.

The UK Health Security Agency’s yellow warning is in place across seven regions including Southern England until 9pm on Sunday.

It means that the elderly and those with pre-existing health conditions should take extra care.

For more information about the alert, please see the BBC website.

Over 60% of people with MS say their symptoms get worse in the heat. National charity the MS Society has information on their website about MS and heat sensitivity. Fortunately the aircon is on here at the Centre to keep you cool!

UPDATE 6 Sep – this alert has now been upgraded to amber, please take care in the heat

Well done Sandra Tearney!

Well done to Sandra Tearney who won 2nd place in the 80cm show jumping and won the 90cm at Wellington Riding Club.  Sandra has been coming to the centre for oxygen therapy for some time now and is also currently training to be an oxygen volunteer.  Sandra is such a positive lady who has been battling ovarian cancer, she is a true inspiration.  Well done Sandra!

WABC WheelyFest 23

Wallingford Accessible Boat Club (WABC) helps disabled and less mobile people get out on the River Thames free of charge aboard our Wheelyboat, WOW-one.  To raise the funds needed to keep this charity afloat, WABC will host Wheelyfest, a day of live music and fun, on Sunday September 24th at Wallingford Sports Park. Tickets are available via the WABC website but whether you can make it or not, we would love you to check out our online auction and make a bid. We need every penny we can raise!        

What Next? Newly Diagnosed MS Society Information Webinar – 6 Sep

Who is this event for?

  • People who are newly diagnosed with MS.
  • Family or friends of those who have been newly diagnosed with MS

The programme

In the webinar and the following week’s conversational group, they’ll help you to start making sense of your diagnosis. They will provide you with the information and signpost to further support and guidance that you may need. The MS Society hope that these sessions will empower you to live well with MS.

These sessions are for you if:

  • You’re looking for ways to make sense of your diagnosis
  • You don’t know what information and support is available to you

Date: Wednesday 6 September

Time: 6.30pm to 7.30pm

This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk

Click here to book your space

Progressive forms of MS: MS Society wellbeing course starting 4 Sep

Join these MS Society sessions where you’ll connect with other people across the UK with progressive forms of MS over three consecutive weeks.  Each session is usually made up of a small group of people from across the UK living with MS. These are fairly informal and each week will have a different topic. 

Session Overview:

  • Monday 4th Sep, 6.30pm to 8pm: Understanding symptoms
  • Monday 11th Sep, 6.30pm to 8pm : Impact of invisible symptoms
  • Monday 18th Sep, 6.30pm to 8pm : Self care

In the first two sessions an MS nurse will answer questions and, in week three, you’ll cover different elements of self-care, including physical activity and mental health.

The course works best if you attend all three sessions. This’ll give you the opportunity to meet other people who may share similar experiences to you.

Click here to book your space

This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk