We have been donated a second hand Reviber Mini Exercise Bike. The Reviber Mini Bike is intended to be used for training arm muscles, and training leg muscles while seated. The Mini Exercise Bike is designed for private, home use. They are currently selling for £99. If anyone is interested in it please would you speak to Sue and make a sensible donation. The manual is available.
Procedures for ALL therapies commencing 19th July
Arrive at the centre and ring the doorbell by the front door,
someone will come and take your temperature and ask you to
confirm you have no symptoms of Covid19.
Use the automatic hand sanitiser as you come in by the bookcase
on the left. If this is not working use the one on the desk in
reception.
Masks are not compulsory, but are advised.
Socialising is now allowed and you are welcome to stay for tea,
biscuits.
Extra cleaning and sterilisation will continue throughout the
centre including therapists rooms, oxygen chamber, toilets etc.
Please continue to bring your own towel and gown/blanket as
required.
If you feel unwell you should not come in and if you feel
unwell within 2 weeks of being at the centre you will
need to tell us promptlyMember procedures covid commencing 19 June 21.docOpen with Google DocsPage 1 of 1
Oxygen update
ONLY 11am start ON TUESDAYS from 13th July, all other days remain the same, a 10am.
Donation
Many thanks for the cheque from Sutton Courtenay WI for the cheque for £400.
Pictured: Margaret Hamilton, President and Yvonne Hastings, Vice President and MS Member.
New fatigue guide from the MS International Federation
The MS International Federation’s (MSIF) International Resource Group, from MS Australia, MS Society UK and ARSEP Foundation resources have put together a new guide about MS fatigue.
MS fatigue is one of the most common MS symptoms and one of the hardest to manage.
MS fatigue is not only difficult to define but it is an invisible symptom (in other words, others can’t see it). This can make it difficult to understand or explain to others who may interpret it in the wrong way. It is often described as heavy tiredness (lassitude), general weakness or lack of energy but for some, it may be described as total exhaustion.
The reality is that every definition is correct because the experience is subjective and everyone experiences MS fatigue differently. Fatigue in people with MS is complex but the added burdens of worry about COVID-19, the stresses of isolation and consequential lack of exercise is making the problem worse for many people.
The guide is packed full of tips for managing MS fatigue, including exercises you can do at home and a fatigue diary.
It comes in eight languages and you can download it from the MSIF website here: https://www.msif.org/resource/fatigue-an-invisible-symptom-of-ms
Electric Wheel Chair for Sale
Purchased brand new on 11.03.2021 and only used a handful of times.
So it is in brilliant condition!
£2200 or sensible offers. Purchased new £2895.
All paperwork available to see including: Sales receipt Servicing department information sheet. Get wise to using electric scooters and wheel chairs info sheets. Get wise to getting more form your battery info sheets. Owners manual. Product specifications sheet. Consumer safety guide. Product insert information. Basic operating instructions manual. PDI check sheet for power chairs. Keyless locking quick reference guide.
Please contact Centre Manager, Sue.
Grand job Phil
Many thanks to Phil Hicks for not only filling my empty container with lovely flowers and soil but bringing 2 more potted up containers. They really look lovely and really brighten up the front of the building. Grand job Phil.
Masters research questionnaire
We are Human Nutrition MSc students from Oxford Brookes University and my team and I are interested in how COVID-19 and lockdown may have impacted on diet and other lifestyle behaviours. Due to the limited research to date we are starting our research from a very fresh view.
I am emailing you because we have constructed a short online questionnaire to ask about dietary and other lifestyle habits (exercise, supplement use etc) on health (both physical and mental) post COVID-19. We are looking at this in people with Multiple Sclerosis, Parkinson’s Spinal Cord Injury and those who have had a Stroke.
Click on the link below to online questionnaire for further information. The time required by each volunteer should be no more than 30 minutes.
Bladder care is self care
The MS team at the Queen Mary University of London, Barts and The London School of Medicine and Dentistry puts together the MS Blog. They have regular posts looking at the latest MS research and, most importantly, putting the information in understandable English!
This week they have looked at some of the bladder problems that many people with MS experience. In many cases, bladder problems are not something you need to tolerate as they are largely treatable.
You can read the article by clicking here
For more advice visit the MS-UK website and read their ‘Bladder and Bowel’ Choices leaflet.
Click here to read the MS-UK Bladder and Bowel Choices leaflet
Cancellation of oxygen appointments
Whilst I appreciate people can be unwell, we have had a large increase in cancelled appointments on the day/day before. Whilst people generally pay a donation which is lovely, members need to think about our lovely volunteers that give up their own time to come and run the oxygen sessions. With restricted oxygen places due to covid it is frustrating for everyone when 3 people are booked in and only one turns up.
Many thanks
Sue Doran
Centre Manager
