Bladder care is self care

The MS team at the Queen Mary University of London, Barts and The London School of Medicine and Dentistry puts together the MS Blog. They have regular posts looking at the latest MS research and, most importantly, putting the information in understandable English!

This week they have looked at some of the bladder problems that many people with MS experience. In many cases, bladder problems are not something you need to tolerate as they are largely treatable.

You can read the article by clicking here

For more advice visit the MS-UK website and read their ‘Bladder and Bowel’ Choices leaflet. 

Click here to read the MS-UK Bladder and Bowel Choices leaflet

Cancellation of oxygen appointments

Whilst I appreciate people can be unwell, we have had a large increase in cancelled appointments on the day/day before.  Whilst people generally pay a donation which is lovely, members need to think about our lovely volunteers that give up their own time to come and run the oxygen sessions. With restricted oxygen places due to covid it is frustrating for everyone when 3 people are booked in and only one turns up. 

Many thanks

Sue Doran

Centre Manager

MACHINE LEARNING IDENTIFIES NEW SUBTYPES OF MS FROM MRI SCANS

Source MS Trust: Researchers wanted to find out if there are hidden patterns in MRI brain
scans taken over time that would better identify biological differences in MS activity and
detect progression earlier.
The study in brief
MS is divided into four subtypes: clinically isolated syndrome, relapsing remitting,
primary and secondary progressive MS and are used to guide the timing and choice of
treatments. However, these subtypes are based on observed symptoms, such as
relapses and disability, which can be difficult to measure and may not reflect the
underlying biology driving the course of someone’s MS.
Researchers wanted to find out if there are hidden patterns in MRI brain scans taken
over time that would better identify biological differences in MS activity and detect
progression earlier.
The international team used MRI scans previously taken in clinical trials involving 6322
people with MS. Data was extracted from the scans and machine learning (artificial
intelligence) used to identify subgroups with similar patterns of change in brain
structures over time. Results from the initial findings were tested against a second set of
MRI scans from 3,068 people with MS.
Find out more: https://mstrust.org.uk/research/research-updates/210513-machinelearning-identifies-new-subtypes-ms-mri-scans

100 club winners for May

100 club winners for May:
1st Prize: David Whipp

2nd Prize: Shirley Ray

3rd Prize: Joel Baldwin
winning a share of: £82.50

Please ask Sue/Reception for details, only £5 a month.

Reminder – AGM Thursday 10th June

Due to the unusual circumstances again this year and social distance measures the AGM will take place via a zoom* meeting on:

Thursday 10th June, 2.30pm

The code is 718 389 8662

Password: OMSTC (uppercase)

*If you need to know how to access Zoom, contact Sue in September, if you do not have a speaker or microphone on your PC, you can use your phone.

Nominations and seconders are requested for a max of 10 Committee members.  They must be emailed to Sue at ms.therapy@btconnect BEFORE the meeting.

(Nominations can only be accepted for paid up members and can only be made by paid up members.)

The Officers of the Company will be elected from the Committee Members

They will consist of :   a Chair, a Treasurer and a Secretary

If you are unable to attend the meeting to vote you may appoint a proxy to vote for you. 

You shop. Multiple Sclerosis Therapy Centre Oxfordshire gets money. For free.

Just start your online shopping journey at easyfundraising, then shop as normal with any of our 4,200 retail partners. Once you make a purchase, our retailer partners will make a small donation to your chosen cause to say ‘thank you’.

Use this referral link to start shopping and we will receive £5!
https://www.easyfundraising.org.uk/causes/omstc/?invite=22UNQQ&referral-campaign=c2s?ecro94=admin

Machine learning identifies new subtypes of MS from MRI scans

The study in brief

MS is divided into four subtypes: clinically isolated syndrome, relapsing remitting, primary and secondary progressive MS and are used to guide the timing and choice of treatments. However, these subtypes are based on observed symptoms, such as relapses and disability which can be difficult to measure and may not reflect the underlying biology driving the course of someone’s MS.

Researchers wanted to find out if there are hidden patterns in MRI brain scans taken over time that would better identify biological differences in MS activity and detect progression earlier.

The international team used MRI scans previously taken in clinical trials involving 6322 people with MS. Data was extracted from the scans and machine learning (artificial intelligence) used to identify subgroups with similar patterns of change in brain structures over time. Results from the initial findings were tested against a second set of MRI scans from 3,068 people with MS.  Read on.

Spare plants needed for the Centre

If anyone has any spare plants for potting into a tub for the centre please let me know? We have a square planter by the ramp, it’s a bit tatty but with some nice summer flowers in it, it might brighten the front up a bit.

Many thanks

Sue

Updated procedures for ALL therapies

Procedures for ALL therapies

commencing 17th May 2021

 Arrive at the centre and ring the doorbell by the front door, DO NOT ENTER

the building. If someone else is waiting, wait at the bottom of the ramp until

the walkway is clear AND KEEP A 2 METRE DISTANCE AT ALL TIMES

 Someone will come to the front door and take your temperature and ask you

to confirm you have no symptoms of Covid19.

 Before entering the centre, use the automatic hand sanitiser to the right of

the front door. If this is not working use the one on the desk in reception.

 You are required to wear a mask that you can either bring with you, or make

a donation for one provided at the centre.  (Centre masks are CE Certified

masks, Type IIR)

 You can bring a carer to help you into the centre, if this is necessary, but

request that they do not stay, but remain contactable.

 TURN UP AT YOUR APPOINTMENT TIME, NOT EARLY. IF YOU TURN UP EARLY

PLEASE WAIT IN YOUR CAR. THERE WILL BE NO CHAIRS AVAILABLE IN

RECEPTION.

OXYGEN THERAPY:

MONDAY 10am, TUESDAY 10am and 11.30am, THURSDAY 10am, FRIDAY 10am

(and some Wednesdays at 10am)

 IF YOU ARRIVE EARLY PLEASE WAIT IN YOUR CAR. When your temperature

has been taken you need to go STRAIGHT into the chamber with your mask

on. THERE SHOULD BE NO CHATTING IN THE CHAMBER. Bring your own

water and container and take home to wash. Bring your own blanket/hot

water bottle if required and take home.

 We will only be able to accommodate 3 people per oxygen session due to

social distancing at sitting positions 1,3,5 or 2,4,6

 Keep your paper mask on until pressurisation of tank reaches half way, the

operator will tell you when this is.  Masks must be kept on until the end of

the session/or until it is hard to breath then remove oxygen mask and put on

paper mask.

 From Monday 17 th May: You are responsible for cleaning your own mask with

a sterisiling wipe that will be provided at the centre. Please place your mask

in a clear bag and hand to the operator to put away. MASKS NOT TO BE

TAKEN HOME.

 After the session volunteers will completely sanitise the chamber using

wipes, this includes door handles, chair, chair arms etc.

 Oxygen pipes will be sterilised after every session.

 YOU SHOULD LEAVE THE CENTRE IMMEDIATELY AFTER THE SESSION, NO

HANGING AROUND IN THE WAITING ROOM. Payments can be made by

online banking if necessary.

PHYSIOTHERAPY, MASSAGE, ACUPUNCTURE, FOOTCARE, AND

MANUAL THERAPIST:

 Bring your own towel AND gown/blanket as required.

 DO NOT HANG AROUND IN RECEPTION, TURN UP AT YOUR APPOINTMENT

TIME, there will be no sitting in reception. Leave the centre straight away.

Other relevant notes:

 If you feel unwell you should not come in and if you feel

unwell within 2 weeks of being at the centre you will need

to tell us promptly

 We can now take payments by card (only available if someone at reception

desk) OR payments can be made by bank transfer(ask for details)

 MS Patients will get priority over appointments

 No socialising AT ALL, so no tea/coffee/biscuits, sorry ☹

 You should leave the centre immediately after your appointment.

 Everyone should sanitise the toilet after each use, using the sanitising spray in

the toilet and paper towel, then dispose of in the bin (NOT DOWN THE

TOILET)

 There is also 5 litre hand sanitiser on the reception table

 These procedures are constantly changing, so please read them if they are

sent to you again as they may have been updated.Member procedures covid commencing 17 May 21.docOpen with Google DocsPage 2 of 2