Update to Physio leaving – luckily for us Tricia has decided to offer her services on an ad hoc basis. This will probably be on Friday afternoons. There will not be any fixed appointments as such. Contact the centre if you would like a Friday afternoon appointment as some point and we will make a note to ring you when we have any dates. Good news for us, please make use of our Physio or we may loose her for good.
Talks with MS: Brain Health and MS, MS Society webinar – 29 March
Talks with MS are proud to host this webinar in partnership with the MS Society to discuss different aspects of MS in the Black community. This month they will be discussing the topic of brain health.
Join Terri-Louise as she talks to a healthcare professional about brain health when living with MS. They’ll be covering brain function and struggles you may face due to your MS. Whether you have MS or affected by MS, you can join this webinar.
Date: Wednesday 29 March
Time: 6.30pm to 7.30pm
This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk
Enable Magazine March-April
Presenting Enable Magazine
March-April issue
The UK’s leading disability and lifestyle title
Introducing the March-April issue of Enable Magazine.
We’re so excited to share this issue with you and your network.
As usual, this issue is packed with informative, important and exciting content. We catch up with broadcaster Nicky Campbell and his daughter Kirsty to discuss them both having an ADHD diagnosis but with differing experiences. This issue, we’re putting the spotlight on the fight for disabled people’s rights as we speak to people celebrating World Down syndrome Day; discuss the new demands for global action on care; and highlight Sophie Morgan’s new campaign, Rights on Flights.
Also inside, Women’s Aid and Refuge reveal where to turn if you are experiencing abuse; we share solutions to help you get a good night’s sleep; and we’re breaking down how certain benefits are changing in the new tax year. Plus, we meet the founder of pill case brand Tabuu, Lucy Rout, and learn what to expect from the upcoming National Careers Week. Enjoy all of this and much more inside the March-April issue.
Enjoy all of this and much more inside the March-April issue.
Wallingford Accessible Boat Club – Spring Newsletter
Understanding Fatigue, MS Society Webinar – 20 March
This online session about fatigue will cover themes including:
- What is MS fatigue
- Primary and secondary fatigue
- Physical and cognitive fatigue
- Managing fatigue
They will also be joined by Living Well volunteers who are living with MS and will share their experiences managing fatigue. The session will include a short talk from expert speaker Sarah Thomas from Bournemouth University Clinical Research Unit followed by a chance to ask questions, chat and share experiences.
Date: Monday 20 March
Time: 6.30pm to 8pm
This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk
Free Six Week Hope Programme for MS
Do you want to enhance your resilience through these difficult times, rediscover strengths and increase your ability to cope?
Hope For The Community CIC are running a group self-management programme for people living with MS to improve their wellbeing. The programme was co-created with people living with MS, healthcare professionals and researchers at Coventry University to make sure it is rooted in science.
- Free 6 week course starting from 19 April
- Facilitated by trained community volunteers with lived experience of MS
- Learn whenever you like, at a pace that suits you.
- Learn wherever you like. You can access the Programme on desktop, tablet or smartphone.
- You can learn whatever you like. If you do not enjoy some of the content or activities, just skip it or bookmark it and come back to it later.
- Share and learn from each other. We all have a story to share and we learn best with others. If you want to, make sure you join in the page discussions, forum topics and by liking and commenting on others posts.
- Online sessions covering topics such as fatigue management, physical activity, healthy eating, stress management and more
If you are interested in signing up, please visit the Hope for the Community website
Hot water bottles and wheat bags
With immediate effect hot water bottles and wheat bags are now on the prohibited items list at the Centre. This is due to a recent incident. Prohibiting them means the risk of accidents is eliminated completely. We are sorry for any distress this may cause. You are welcome to bring in blankets, dressing gowns etc to keep you warm. Any questions please speak to the Centre Manager.
Physiotherapist Tricia
It is with much sadness that we will be saying goodbye to Tricia our physiotherapist at the end of March. Unfortunately she just hasn’t been getting enough folk in for appointments and it’s not worth her while coming anymore. On a personal and professional note she will really be missed by all.
Bev and Steve are volunteer oxygen operators at the centre
Steve, Chris (our son) and I are doing a 70 ish mile walk, from our home in Letcombe Regis to Bristol, starting next Thursday 2nd for 3-4 days to raise money for the centre.
Here is our Just Giving information if you would like to donate.
A Chat with UK MS Register and MS Tissue Bank, MS Society Webinar – 15 March
This Asian MS Series webinar will be joined by Rod Middleton from the University of Swansea, who will be talking about the UK MS Register and Professor Richard Reynolds from Imperial College London, who will be talking about the Multiple Sclerosis and Parkinson’s Tissue Bank.
Both these initiatives receive funding from the MS Society and are key ways for people with MS to get involved in research.
The MS Register is a ground-breaking study designed to increase our understanding of living with MS in the UK, whilst the Multiple Sclerosis and Parkinson’s Tissue Bank is a national collection of central nervous system (CNS) tissue samples donated by individuals with MS, Parkinson’s disease and related neuroinflammatory and neurodegenerative conditions.
Professor Reynolds is also currently heading up the establishment of a brain bank in Singapore, which will focus on the collection of tissue samples from people in South East Asia.
Date: Wednesday 15 March
Time: 6pm to 7pm
