01235 832023
Do you have 1.5hrs spare to help with a charity collection at Tesco Extra in Abingdon on Saturday 25th March. We need people to just stand inside the entrance/exit with a collection tin to collect spare change. It’s a great opportunity for the centre and these collections.
These collections are usually very productive generally raising in excess of £350 just for 1 day. If you or anyone else can help please let Sue know asap. Time slots are: 9.00, 10.30, 12.00, 1.30, 3.00, 4.30.
Our marathon runner Alison is now running the London Marathon on 23 April 23 (the October place didn’t work out), she is running for US! Please would you kindly sponsor her using the link below or there is a paper sponsorship form at the Centre. Alison has been very patient due to issues with MS National and was very disappointed about the October place falling through, it would be great if you could show your support.
hese Staying Active with MS sessions are led by two MS Society volunteers, they talk about how getting physically active has helped them to take control of their own wellbeing.
In these sessions they discuss different ways you can try to get and keep active as well as share hints and tips on ways to keep motivated. Each month focuses on a different activity or interest, sometimes with a short exercise session or video included. This month’s topic is cycling. The seminar will be joined by James Whatley, UK Programme Director from Bike the UK and they’ll be discussing ways to make cycling accessible when living with MS.
Date: Monday 6 March
Time: 6pm to 7pm
This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk
Do you find yourself setting goals but not achieving them? Perhaps you feel overwhelmed by setting goals.
This webinar will feature life coach Andrea Thomas. Andrea runs her own health and wellness business and has been living with MS for over 25 years. She will cover the purpose and value of setting goals in order to enable you to achieve results.
Date: Tuesday 28 February
Time: 6.30pm to 7.30pm
This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk
We have been sent the following warning from a carers’ organisation which we are sharing for your information:
“We are getting in touch to alert you to a marketing campaign that targets unpaid carers as we have strong concerns about its legitimacy.
The campaign can be seen via its website
You will see that the campaign asks unpaid carers to buy a Carers Card UK via a prominent online button. People clicking through will be asked to give their bank details.
The website prominently displays the logos of organisations widely respected among the unpaid carer community, including the NHS, Carers Trust and Carers UK.
Carers Trust have been in touch with us and notified that the NHS and Carers UK have not consented for their logo to be used to help market the Carers Card UK. We understand that the NHS have referred this matter.
Our strong advice is that we recommend unpaid carers do NOT purchase the Carers Card UK.”
Are you living with MS?
Do you want to enhance your resilience, rediscover strengths and increase your ability to cope?
Hope For The Community CIC are running a group self-management programme for people living with MS to improve their wellbeing. The Programme was co-created with people living with MS, healthcare professionals and researchers at Coventry University to make sure it is rooted in science.
What will the programme involve?
You will be asked to enrol on a 6 week online Hope Programme. It focuses on you and your wellbeing.
Each week the programme covers topics like:
The programme includes quizzes, worksheets, audio and video materials, interactive activities and social networking via email and forums. There will also be a mindfulness session and an opportunity for the group to come safely together online. You will be supported throughout by trained facilitators who live with MS.
The programme can be accessed from PC, laptop, tablet or smartphone. The programme is not delivered in a way for people to be on “at the same time”. You will have access to the programme 24/7. It takes about 2 hours to go through the materials each week, but you can do this at your own pace and time that suits. We deliver the programme to people living with MS around the country and many found the programme helped them to feel better and improved their quality of life.
Next course date: 19th April 2023 – ONLINE
Sign-up and more info: BOOK NOW
Remyelination is the production of new myelin sheaths that protect the nerve fibres ensuring the electrical impulses are carried to the intended destination within the nervous system. To slow down the progression of MS, remyelination needs to be able to repair the nerve fibres, since the nerve fibre itself cannot be recovered or regenerated once lost.
This introduction session will be going into detail about what remyelination is, its creation to slow down the progression of multiple sclerosis (MS) and information about a new class of Disease Modifying Treatments (DMTs) in the trial phases which promotes remyelination.
Date: Monday 20 February
Time: 2pm to 3pm
How to take part
This session is organised by national MS charity, MS-UK. You can find out more about them by visiting their website at www.ms-uk.org
We have been sent information about the following organisation which might be of interest:
Open Inclusion are a London-based research organisation who specialise in helping to improve the design of products and services through authentic insight from disabled and older people. They work with household brands from Microsoft and Google to NatWest, John Lewis, the NHS and transport networks.
They would like to expand their current UK community of disabled and older people to join in their research. Research can range from short online surveys to focus groups, in depth interviews and testing. Participation is always paid and voluntary.
If you are interested in joining the Open Inclusion community, please sign up here. You can unsubscribe at any time.
Open Inclusion are currently running an online survey about how your disability or condition changes over time, and the impact that this may have on your lives. All responses will be reported anonymously and you will receive a £15 Amazon voucher as a thank you for completing the survey. If anyone would like to take part with or without joining the Open Inclusion community they can email Open Inclusion to find out more
The Changing Symptoms online MS Society sessions are for people affected by MS who are looking for a chance to find out more about changing symptoms and they feature MS nurses and volunteers alongside members of the helpline team. They will cover topics including:
Date: Tuesday 21 February
Time: 6pm to 7pm
This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk
Final year Illustration degree student Christina Collis has asked for help with her research into designing cards for people with MS to show when they need priority access to a toilet.
Christina explains;
“For my final year research project everyone has to choose their own topics and I chose to do mine on MS. I know bladder problems are one of the most common symptoms that happens with MS as my dad suffers from it. So I thought I could design cards where people who have MS would have priority when it comes to using public toilets. I have designed a questionnaire to ask people with MS what they would like the card to say, would they be comfortable wearing it around their neck and what wouldn’t they want it to say. I want to make a design which would be something they are proud to wear and not be ashamed. I think this could really help people with MS.”
If you would like to answer Christina’s short questionnaire, please click here.