Understanding Fatigue, MS Society Webinar – 20 March
This online session about fatigue will cover themes including:
- What is MS fatigue
- Primary and secondary fatigue
- Physical and cognitive fatigue
- Managing fatigue
They will also be joined by Living Well volunteers who are living with MS and will share their experiences managing fatigue. The session will include a short talk from expert speaker Sarah Thomas from Bournemouth University Clinical Research Unit followed by a chance to ask questions, chat and share experiences.
Date: Monday 20 March
Time: 6.30pm to 8pm
This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk
Free Six Week Hope Programme for MS
Do you want to enhance your resilience through these difficult times, rediscover strengths and increase your ability to cope?
Hope For The Community CIC are running a group self-management programme for people living with MS to improve their wellbeing. The programme was co-created with people living with MS, healthcare professionals and researchers at Coventry University to make sure it is rooted in science.
- Free 6 week course starting from 19 April
- Facilitated by trained community volunteers with lived experience of MS
- Learn whenever you like, at a pace that suits you.
- Learn wherever you like. You can access the Programme on desktop, tablet or smartphone.
- You can learn whatever you like. If you do not enjoy some of the content or activities, just skip it or bookmark it and come back to it later.
- Share and learn from each other. We all have a story to share and we learn best with others. If you want to, make sure you join in the page discussions, forum topics and by liking and commenting on others posts.
- Online sessions covering topics such as fatigue management, physical activity, healthy eating, stress management and more
If you are interested in signing up, please visit the Hope for the Community website
Hot water bottles and wheat bags
With immediate effect hot water bottles and wheat bags are now on the prohibited items list at the Centre. This is due to a recent incident. Prohibiting them means the risk of accidents is eliminated completely. We are sorry for any distress this may cause. You are welcome to bring in blankets, dressing gowns etc to keep you warm. Any questions please speak to the Centre Manager.
Physiotherapist Tricia
It is with much sadness that we will be saying goodbye to Tricia our physiotherapist at the end of March. Unfortunately she just hasn’t been getting enough folk in for appointments and it’s not worth her while coming anymore. On a personal and professional note she will really be missed by all.
Bev and Steve are volunteer oxygen operators at the centre
Steve, Chris (our son) and I are doing a 70 ish mile walk, from our home in Letcombe Regis to Bristol, starting next Thursday 2nd for 3-4 days to raise money for the centre.
Here is our Just Giving information if you would like to donate.
A Chat with UK MS Register and MS Tissue Bank, MS Society Webinar – 15 March
This Asian MS Series webinar will be joined by Rod Middleton from the University of Swansea, who will be talking about the UK MS Register and Professor Richard Reynolds from Imperial College London, who will be talking about the Multiple Sclerosis and Parkinson’s Tissue Bank.
Both these initiatives receive funding from the MS Society and are key ways for people with MS to get involved in research.
The MS Register is a ground-breaking study designed to increase our understanding of living with MS in the UK, whilst the Multiple Sclerosis and Parkinson’s Tissue Bank is a national collection of central nervous system (CNS) tissue samples donated by individuals with MS, Parkinson’s disease and related neuroinflammatory and neurodegenerative conditions.
Professor Reynolds is also currently heading up the establishment of a brain bank in Singapore, which will focus on the collection of tissue samples from people in South East Asia.
Date: Wednesday 15 March
Time: 6pm to 7pm
What Next? Newly Diagnosed MS Society Information Webinar – 7 March
Who is this event for?
- People who are newly diagnosed with MS.
- Family or friends of those who have been newly diagnosed with MS
The programme
In the webinar and the following week’s conversational group, they’ll help you to start making sense of your diagnosis. They will provide you with the information and signposting to further support and guidance that you may need. The MS society hope through these sessions that they will empower you to live well with MS. These sessions are for you if:
- You’re looking for ways to make sense of your diagnosis
- You don’t know what information and support is available to you
Date: Tuesday 7 March
Time: 6pm to 7pm
MS Newsletter Spring 2023
Raffle prizes for quiz night 17 March 2023
£5 a strip (or £1 a ticket)
Prizes include:
- Cream tea for 2 Millets Farm
- Meal for 2 donated by the Plum Pudding, Milton
- Hamper from Hampers.com
- Pair of complementary tickets at Oxford Playhouse
- Therapies at the centre
- Bottles of wine donated from Fleur Pub East Hagbourne & Mulberry Didcot
plus lots, lots more…
