Legal advice service for people with MS

Sometimes you may need legal advice to help you know if you are being treated fairly, to understand your rights in a situation, or to challenge unfair practice. National charity the MS Society runs a legal advice service which can help.

They work with the Disability Law Service (DLS) to provide free, confidential legal advice to people affected by MS. In England and Wales you can get advice on employment, disability discrimination, and community care. These services are free of charge to everyone affected by MS.

Call the MS Society Helpline on 0808 800 8000 or visit the MS Society website to find out more.

Enable May-June

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­Presenting Enable Magazine May-June issueThe UK’s leading disability and lifestyle title­­

Read the magazine

The summer months are just beginning and this issue has a wealth of content to keep you informed, entertained and inspired. For this issue’s lead interview, we meet neurodiverse author Elle McNicoll to talk about her hit novel, A Kind of Spark, and the process of adapting it into a TV series. 
 
Inside, we’re putting the focus on the importance of community as we spotlight the contribution unpaid carers make, before learning about fostering. Reaching out for support from others can be difficult but important: we’re sharing tips on coping with anxiety and when to seek help; two women share their positive experiences of having Barbie butt surgery; and we meet a charity helping to remove barriers to period education. 
 
This issue, we’re also sharing Scottish holiday inspiration and discovering an accessible Jersey hotel; Yvonne Cobb shares her latest recipe; and we go behind the scenes of the campaign aiming to improve election accessibility. Plus, a disability employment adviser explains their role; we put the spotlight on barriers to higher education; and we meet the police officer turned designer launching an adaptive clothing brand. 
 
All of this and much more inside. 

100 club winners April

100 club winners April:

1st prize – Sam Reilly 

2nd prize – Nandi Ablett

3rd prize – Martin Gulliver

Sharing a prize fund of £90

You’ve got to be in it to win it!  Speak to Sue to join!!

MS Awareness Week is next week

Thank you to everyone who has already shared their story with us ahead of MS Awareness Week. If you haven’t, there’s still time for you to get involved. Please complete our form if you’d like to contribute. 

Next week there are some brilliant webinars coming up. We have listed some below and we are sure there will be more added next week. Follow us on Facebook and Twitter to stay up to date. 

Useful webinars during MS Awareness Week

You might like to sign up for the following webinars and online sessions run by some of the national MS charities during MS Awareness Week;

Useful links to other charities for MS Awareness Week

For further information about MS Awareness Week, you can visit the following websites from national MS charities and organisations;

https://www.mssociety.org.uk/get-involved/ms-awareness-week

https://mstrust.org.uk/get-involved/ms-awareness-week

https://www.msntc.org.uk/news/ms-awareness-week

Boat trip

Would you be interested in a boat trip?  We had 2 trips last year and they were very successful and much enjoyed.  If you are interested please let Sue know and she will try and organise something…….

Don’t miss out on donations for Multiple Sclerosis Therapy Centre Oxfordshire!

Spread the word about BIG donations
 Don’t forget you can do this via Facebook, Twitter, Instagram, Whatsapp
    
Copy, paste and share You could raise BIG free donations including up to £150 for Multiple Sclerosis Therapy Centre Oxfordshire when you use #easyfundraising to purchase insurance, broadband, mobile upgrades, ISAs or holidays. Booking.com, MoneySupermarket, SKY TV & Broadband, Carphone Warehouse, Scottish Friendly and many more will donate to us for FREE! Sign up here: https://www.easyfundraising.org.uk/causes/omstc?&utm_medium=Email-share&utm_source=Facebook&utm_campaign=save-and-raise&utm_term=CE741

MS Society webinar – New DMT Tool – 19 April

Choosing a Disease Modifying Treatment (DMT) can be daunting, whether you are newly diagnosed or changing treatment. There’s lots of information out there on DMTs and it can be difficult to read through and make the choice that’s right for you. The MS Society have developed their DMT Decision Making tool and in this session their facilitator will tell you a bit more about the tool. You’ll also get to hear from volunteers and find out how they made the decision of choosing their DMT and process they went through.

This new tool is for you if you live in the UK, Channel Islands or Isle of Man and have:

  • relapsing remitting MS
  • some types of primary or secondary progressive MS

Date: Wednesday 19 April

Time: 6pm to 7pm

This session is organised by the national MS charity, the MS Society. You can find out more about them by visiting their website at www.mssociety.org.uk

Click here to book now

The Octopus MS trial

Over the last few weeks there has been a lot of discussion about the Octopus MS research trial. It even made the BBC homepage.

But what is it about?

The Octopus trial will test drugs to help people with progressive MS. The MS Society has produced a short film explaining all about the trial.

Watch the MS Society video about the trial

The MS Society said on Twitter: ‘Our mega-trial for progressive MS – Octopus – has started recruitment at its first hospital site. This means the first few people with primary and secondary progressive MS have begun taking part.’

Find out more about this development and how you could take part here.

Here is what the MS Society say….

‘Octopus is a revolutionary trial that will transform the way we test treatments for progressive MS. A smarter way of testing potential treatments, it could deliver life-changing new treatments up to three times faster.

Octopus uses what’s called a multi-arm, multi-stage (MAMS) design – the first time this has even been done in MS.

MAMS trials make it possible to test new treatments up to three times faster by:

  • Testing multiple drugs at once – and comparing them with a single control group.
  • Using MRI to get an idea of whether a drug looks like it has potential, many months before we’d be able to see an effect of the drug on disability progression. Promising-looking drugs stay in the trial, with hundreds more people joining the existing participants. So what would normally be two consecutive trials are delivered in one.
  • Adding the flexibility to drop drugs that don’t look promising, and slot in new drugs as they’re discovered.

Merging separate trials may sound obvious. But launching a MAMS trial for MS needs so many things to line up perfectly. From hospitals around the country equipped to be trial sites, to the incredibly complicated statistics that underpin the design.’

The MS Society has published a film on their Social Media with trial leader Professor Jeremy Chataway explaining how the Octopus trial will test treatments. Click on the links below to watch it.