Jam Jars wanted……. If you have any jam jars with metal lids, Mark Walker will pay 10p for each. Bring into the Centre.
Bicester QuizNight Thursday
Dave Howell has arranged for us to be the beneficiaries of Quiz Night at the Nightingale in Bicester tonight (Thursday) 7.30.
If anybody would like to come too, feel free to talk to me about getting a lift.Jon
Have your say on the NICE quality standard for MS
Source MS Trust:
Calling all people with MS and health professionals! We need your help to shape our response to a consultation on the key areas for improving services for people with MS.
Following the publication last year of the NICE Guideline for the management of MS in primary and secondary care (Clinical Guideline 186), NICE is now consulting on the key priorities that will help drive service improvement and improve outcomes for people with MS. These are set out in the draft NICE quality standard Multiple sclerosis in adults: diagnosis and management. Read on.
Plegridy approved for NHS in Wales
Source MS Trust:
Plegridy (peginterferon beta-1a) has been approved as a treatment for relapsing remitting multiple sclerosis on the NHS by the Welsh drug regulator the All Wales Medicines Strategy Group (AWMSG).
Plegridy should be available on the Welsh NHS within three months, so neurologists should be able to prescribe it from late October 2015. Plegridy was approved for NHS treatment in Scotland in January. The regulatory bodies for England (NICE) and Northern Ireland have not yet considered Plegridy. Read on.
Wheelchair services in England ‘are failing’
Source BBC:
One of Great Britain’s most successful Paralympians has said wheelchair services across England are failing on every level.
Baroness Tanni Grey-Thompson has launched a new national charter to improve services across the country. Read on.
Reply please!
I am in discussions with Nuala Reeves (MS Nurse) about the possibility of regular visits to the Centre. I would like to know what you would like from a session. Would you like a 15 minute one-to-one appointment, or longer? Every 3 months, or longer? Would you prefer a drop in clinic? What exactly would you benefit from?
This needs to work for you, so please say what you want and as many replies as possible please so I can show the interest and really try and get this up and running.
Sue
Branded MS Clothing for Sale
We now have zipped fleeces with our logo on the front cost: £20, I have 2 in for viewing, if you would like to order please let me know. Also new stock of light blue poloshirts, dark blue polos and dark blue sweatshirts.
Fun day at the White Horse Bicester
Progressive MS. Issue three (August/ September 2015)
My name is Ian Cook. I am a journalist with progressive MS from the UK who is writing a regular free ezine about progressive MS. Issue three (August/ September 2015) is attached. I hope you find it interesting.
In this issue are stories about trials for people with primary progressive and secondary progressive MS, some of which are due to report this year. Ocrelizumab is a drug which is being trialled in PPMS and SPMS and is due to report in 2015. Another drug Masitinib is halfway through its clinical trials and will probably report next year. Both these drugs have already shown some signs of working in progressive MS.
Plus there are two features – one on FES or Functional Electrical Stimulation which uses small pulses of electricity to get your leg muscles working. FES has been a big help in keeping me walking. There’s another feature on biotin or vitamin B7 for progressive MS which is a possible new treatment for progression.
So enjoy reading and please send this to all the people with progressive MS that you know, so they can read it and sign up to receive copies sent directly to their inbox.
Best wishes, Ian Cook
Volunteers needed
Volunteers wanted for collection at Millets Farm Saturday 26th September, time slots start at 9.30 for 1.5hr sessions, see Reception for sheet.
