Have your say on the NICE quality standard for MS

Source MS Trust:

Calling all people with MS and health professionals! We need your help to shape our response to a consultation on the key areas for improving services for people with MS.

Following the publication last year of the NICE Guideline for the management of MS in primary and secondary care (Clinical Guideline 186), NICE is now consulting on the key priorities that will help drive service improvement and improve outcomes for people with MS. These are set out in the draft NICE quality standard Multiple sclerosis in adults: diagnosis and management.  Read on. 

Plegridy approved for NHS in Wales

Source MS Trust:Plegridy (peginterferon beta-1a) has been approved as a treatment for relapsing remitting multiple sclerosis on the NHS by the Welsh drug regulator the All Wales Medicines Strategy Group (AWMSG).

Plegridy should be available on the Welsh NHS within three months, so neurologists should be able to prescribe it from late October 2015. Plegridy was approved for NHS treatment in Scotland in January. The regulatory bodies for England (NICE) and Northern Ireland have not yet considered Plegridy.  Read on.

Wheelchair services in England ‘are failing’

Source BBC:

One of Great Britain’s most successful Paralympians has said wheelchair services across England are failing on every level.

Baroness Tanni Grey-Thompson has launched a new national charter to improve services across the country.  Read on.

Foot Care Dates

Janet Lynn, Footcare – appointments until end of the year:
13 Aug    9 – 3.45
1 Sept     9 – 1.30
24 Sept    9 – 12.45
13 Oct     9 – 12.45
5 Nov       9 – 1.30
24 Nov     9 – 12.45
17 Dec     9 – 3.00

Business & Community Awards 2015

Didcot First’s 7th Annual Business & Community Awards (BACAs) are now open for nominations. The BACAs recognise and reward excellence within Didcot, the surrounding villages and business parks such as Milton Park, Culham Science Park, Harwell Campus and Southmead Industrial Estate.

Entries can be made by anyone who would like to recommend a charity, community group or organisation that they think deserves to be acknowledged. Nomination forms can also be found at Soha offices, Newbury Building Society, and Cornerstone in Didcot or on the Didcot First’s website (I have attached the link below) The deadline for applications is 25 September 2015. Anyone who submits a nomination form will also be entered into a free prize draw to win two tickets to the awards gala evening on 13 November 2015.  There are also application forms at the centre.

Independent Living Fund: What is going to happen now?

Source BBC:

Started in 1988, the Independent Living Fund (ILF) has provided financial support to people with disabilities across the UK.

From Wednesday, 1 July, it will no longer exist in England, while Wales, Scotland and Northern Ireland have made different plans for the fund.

ILF users in England have been protesting since the closure was announced in 2010. Read on

Professor Alastair Compston given prestigious research award

Source MS Society:

Professor Alastair Compston has been awarded the first ever ‘Richard and Mary Cave Award for Services to People with multiple sclerosis’.

Professor Compston’s commitment and perseverance from the early 1990s led to the development of Lemtrada (alemtuzumab) – one of the most effective first line treatments ever approved for MS. For some people, using the drug has meant they’ve been able to live symptom free for up to ten years.  Read on.

People with disabilities should get more state money, says UK public

Source MS Society:

Disabled people should not have their benefits cut – in fact they should receive more support from the state, according to an MS Society survey.

A poll of 1,000 people by One Poll found that 67% agreed disabled people should receive more financial support from the state, to help them live independent lives. Read on.