Wheelchair services in England ‘are failing’

Source BBC:

One of Great Britain’s most successful Paralympians has said wheelchair services across England are failing on every level.

Baroness Tanni Grey-Thompson has launched a new national charter to improve services across the country.  Read on.

Reply please!

I am in discussions with Nuala Reeves (MS Nurse) about the possibility of regular visits to the Centre.  I would like to know what you would like from a session. Would you like a 15 minute one-to-one appointment, or longer?  Every 3 months, or longer?  Would you prefer a drop in clinic?  What exactly would you benefit from?
This needs to work for you, so please say what you want and as many replies as possible please so I can show the interest and really try and get this up and running.
Sue

Branded MS Clothing for Sale

We now have zipped fleeces with our logo on the front cost: £20, I have 2 in for viewing, if you would like to order please let me know.  Also new stock of light blue poloshirts, dark blue polos and dark blue sweatshirts.

Progressive MS. Issue three (August/ September 2015)

My name is Ian Cook. I am a journalist with progressive MS from the UK who is writing a regular free ezine about progressive MS. Issue three (August/ September 2015) is attached.  I hope you find it interesting.

In this issue are stories about trials for people with primary progressive and secondary progressive MS, some of which are due to report this year. Ocrelizumab is a drug  which is being trialled in PPMS and SPMS and is due to report in 2015. Another drug Masitinib is halfway through its clinical trials and will probably report next year. Both these drugs have already shown some signs of working in progressive MS.

Plus there are two features – one on FES or Functional Electrical Stimulation which uses small pulses of electricity to get your leg muscles working. FES  has been a big help in keeping me walking. There’s another feature on  biotin or vitamin B7 for progressive MS which is a possible new treatment for progression.

So enjoy reading and please send this to all the people with progressive MS that you know, so they can read it and sign up to receive copies sent directly to their inbox.

Best wishes, Ian Cook

progMSezineissue3

Volunteers needed

Volunteers wanted for collection at Millets Farm Saturday 26th September, time slots start at 9.30 for 1.5hr sessions, see Reception for sheet.

Asian MS Newsletter

A new Asian MS Newsletter has been produced, the editor is Trishna Bharadia.

“Asian MS is a national support group for Asians with MS, their carers, friends and family. We seek to increase awareness and dispel ignorance of MS in the Asian community, as well as put fun and dignity into the lives of Asians with MS and their carers. We also raise money for people affected by MS within the Asian community. We produce online and  printed information in various languages and offer an interpreting service.”

To read click here