Event organised by the MS Society in London, 17-8 September. Learning about latest research and living with MS. At the Excel Centre which is on the Docklands Light Railway, East London.
Oxfordshire Clinical Commissioning Group
Oxfordshire Carers’ Strategy and Carers’ Personal Budgets Consultation
You’ve been invited to participate in the Oxfordshire Carers’ Strategy and Carers’ Personal Budgets Consultation consultation by the consultation manager, Julia Stackhouse.
This consultation is open from 24 Aug 2016 at 00:00 to 14 Nov 2016 at 23:59.
Dear All
Oxfordshire County Council and Oxfordshire Clinical Commissioning Group are undertaking a joint consultation which has two parts. Part 1 is about the Oxfordshire Carers’ Strategy and Part 2 is about the proposed options for carers’ personal budgets. We are keen to hear your views, comments and ideas about both parts of this consultation, as your views on the Oxfordshire Carers’ Strategy and the options for carers’ personal budgets will influence our future decision-making.
To read all the documents relating to this consultation and to respond please go to the following link:
https://consultations.oxfordsh
Please feel free to share this with friends, family, colleagues and any networks that you are involved with. We are keen to hear from as many people as possible.
Thank you.
Julia Stackhouse
01865 334638
ILC Newsletter (August)
|
Contact the ILC Mon to Fri from 9-00 a.m. to 5-00 p.m. ( 01235 524857 :www.guidepostsilc.org.uk
The current GPT ILC contract will cease on 30th September 2016 the ILC is open for business as usual until then. You can sign the online petition. “Keep the Independent Living Centre. Prevention is better than cure!” Online petition Dear friend, I just signed the petition “Keep the Independent Living Centre. Prevention is better than cure!” and wanted to ask if you could add your name too. Please do not send from your work address if you work for Social or Healthcare in Oxfordshire. This campaign means a lot to me and the more support we can get behind it, the better chance we have of succeeding. You can read more and sign the petition here: “Keep the Independent Living Centre. Prevention is better than cure!” Thank you! Colin P.S. Can you also take a moment to share the petition with others? It’s really easy – all you need to do is forward this email or share this link on Facebook or Twitter: http://you.38degrees.org.uk/
New Product information Mangar ( 0800 2800 485 : www.mangar.co.uk Brief details: The Ekamove is an automated, sensor controlled patient positioning system. It is designed to gently and quietly turn patients up to 30°, without the intervention of a healthcare professional. The Ekamove air chamber is placed under a mattress and inflated to laterally lift the person lying on it. Operated via a control unit, you can select a separate positioning time for each step of the process and therefore give better protection to the affected areas of the patient’s body.
Vanilla Blush ( 0141 763 0991 : www.vblush.com Brief details: Supply stylish underwear and swimwear for women who have an ostomy bag. Range of boxer shorts for men.
Brief details: Supply range of products. Includes sinks with integral grab handles. Sinks with red trim, which might be helpful for people living with dementia.
Brief details: Supply Raz AT a stainless steel adjustable modular shower chair.
Brief details: Supply range of Starlight protective helmets for children and adults.
Brief details: Supply range of weighted clothing for children and adults which may be helpful for those with poor body awareness. Includes hoody jackets.
Brief details: Supply range of anti slip material. Can supply rolls and lengths of anti slip matting suitable for shower trays or wet rooms.
Brief details: Supply range of kitchen equipment. We’ve just got this milk carton topin our office.
Cyber beds ( 0121 326 7931 Brief details: Supply pocket sprung mattresses which can be used with adjustable bed.
Topro has launched a new Rose Pink colour in the Topro Troja 2G 4 wheeled walker range.
Peta-UK ( 01376 573 476 : www.peta-uk.com Brief details: Supply range of garden tools and scissors. They have recently brought out a new design of long handled toe clippers.
Holidays
We have found quite a few more holiday options. If you would like copies of our holiday factsheets, please contact us on 01235 524857. Grants Following a phone call from a client who used to be a dancer on stage and screen, we have added some grant-making trusts to our employment grants factsheet. If you would like information on grant-making trusts, please contact us on 01235 524857. Other information new to the ILC. New “Dial a Ride” scheme: Oxfordshire Comet ( 01865 323201 : https://www.oxfordshire.gov. Brief details: The Comet s a not for profit service, created to allow people without suitable access to public transport to make the journeys they want. The Oxfordshire Comet can be booked for any type of trip. Whether it’s to meet friends in town, travel across the county, attend an appointment or pop to the shops. The service is available 10.15am – 2.30pm Monday to Friday (not Bank Holidays). It’s easy to book, with a pre-paid account that can be set up on the phone.
Rally Round : https://www.oxfordshire.gov. Brief details: Rally Round is a free digital network which enables family members, friends and carers to create and organise support for themselves and the person they care for. Rally Round, which is backed by Oxfordshire Clinical Commissioning Group (OCCG) and Carers Oxfordshire, was designed to help frail older people and their family carers, but can be used to help anyone who needs more practical support.
Oxfordshire Specialist Advice Service ( 01865 410660 8 advice@oxfordshiresas.org.uk Brief details: Age UK Oxfordshire, Citizens Advice Oxford, Citizens Advice West Oxfordshire and Oxfordshire Welfare Rights have come together to provide a free, comprehensive, independent advice service from 1st April 2016. The service helps with queries around benefits, money advice, budgeting and other welfare issues and will link you into services that can provide further support. The service is free for people to use. It is jointly funded by Adult Social Care and Children, Education and Families, so it is focused on meeting the needs of people living in Oxfordshire who are struggling with their day-to-day lives due to disability or ill health. However, you don’t have to have a carer or anyone looking after you. They can help if you: Have a disability or long term illness; Have someone in your family household with a disability or long term illness; Are caring for someone with a disability or long term illness; Are a young person transitioning from children’s care services Oxfordshire Specialist Advice Service (OSAS) provides a dedicated telephone advice line and email service, which aims to answer all your queries around benefits, money advice, budgeting and other welfare issues and link you into services that can provide further support. This is backed up by a team of specialist advisers, who are able to meet face to face with people unable to access advice by telephone, email or in their local community.
Useful numbers below to copy into your telephone book
… |
|
||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
One in 10 people with MS could face disability benefit cuts
Source MS Society:
We’ve published new figures today which reveal the severe extent of possible benefits cuts for people living with MS.
We estimate that more than a thousand people with MS have already had their benefits downgraded since Personal Independence Payment (PIP) replaced Disability Living Allowance (DLA) for some. Read on.
Encouraging results in secondary progressive MS trial
Source MS Trust:
The EXPAND trial involved 1,651 people who took either siponimod or placebo capsules once a day for up to five years. A press release by Novartis, who make siponimod, announced that people on treatment took longer to show signs of progression than people on placebo. Progression was measured by EDSS scores taken every three months. Other measures used in the study, includes measuring progression with EDSS every six months, have not yet been made public. Read on.
Scientists have discovered never-before-seen vessels in the brain
Scientists have discovered never-before-seen vessels in the brain
Source Science Alert:
Scientists in the US have discovered a new series of lymphatic vessels in the body that link the brain to the immune system – a connection researchers had previously thought didn’t exist.
The discovery could not only prompt a rewrite of the textbooks, it might also lead to a new understanding of how our immune system influences our brain and our behaviour. Read on.
Researchers trick our cells into treating UTIs without antibiotics
Source: Science Alert
New research shows that our bodies own immune systems have another way to fight off urinary tract infections (UTIs) without antibiotics – and it’s super effective. This is a pretty big deal, seeing as UTIs are one of the most common infections treated with antibiotics in humans – something that’s contributing to the rise of drug-resistant superbugs.
Read on.
New Pre-HSCT Treatment May Make Stem Cell Transplants a Safer Option for MS Patients.
Source Multiple Sclerosis News Today:
Scientists at Stanford University School of Medicine have developed a method for stem cell transplants that may do away with the need for prior systematic treatment with chemotherapy or radiotherapy. If successful, stem cell transplants could be an option for patients with multiple sclerosis (MS), an option now limited by the risk of severe toxicity triggered by the chemotherapy. Read on.
Potentially thousands with MS missing out on crucial treatments
Source MS Society:
A sizeable amount of people living with MS are at risk of being forgotten by the NHS.
A sizeable amount of people living with MS are at risk of being forgotten by the NHS.
One in ten of those with relapsing MS haven’t seen an MS nurse orneurologist for over a year. Among this group, just 12% are taking a disease modifying therapy (DMT) which could reduce relapses and slow progression of MS.
However, 73% of those who have seen a specialist within the last year are taking a DMT. Read on.
Music Festival
