MS Trust launches campaign to fund new MS nurses in areas of greatest need

Posted by & filed under MS News.

Source MS Trust:
A new report published today by the MS Trust shows that 64 per cent of people living with MS in the UK – around 68,000 people – live in areas where there aren’t enough MS nurses to provide vital care and support. This is why we’re launching a campaign to fund new nurses in the areas of greatest need and to make sure no one has to manage MS alone.  Read on.

Half of people with MS have faced ‘unacceptable’ mistreatment

Posted by & filed under MS News.

Source MS Society:
Almost half (45%) of people with MS feel they have experienced mistreatment or stigma because of their symptoms, according to our most recent survey.
Our report showed that 49% of people with MS have been accused of being drunk because they were having trouble walking. Another 47% say they’ve been told they are exaggerating the extent of their MS because they ‘look so well’.  Read on.

MS Documentary seeking interviewees

Posted by & filed under Uncategorized.

I am a student at The London Film School producing a documentary film about the experience of water therapy for MS patients and we are looking for interviewees.

The film seeks to convey the benefits of the therapy, in particular, the way it creates a sense of freedom and escape for patients suffering from MS.

As a part of the documentary, we are interviewing MS patients about their own personal experience and understanding of water therapy and about how they live and cope with having MS in general. You don’t have to have personally experienced water therapy but it is preferred.
Aside from the humanitarian benefit of participating, we can offer to pay those chosen as interviewees a fair sum.

Let me know if you’re interested. I can be contacted via email at this address: erik.bloom@lfs-students.org.uk

Thank you!

Erik

Earlier Detection, Timely Treatment for MS, Parkinson’s Possible with Virtual Reality Tool

Posted by & filed under MS News.

Source Multiple Sclerosis News Today:

Scientists at Russia’s Tomsk Polytechnic University (TPU) and Siberian State Medical University (SSMU), both in Tomsk, have developed a diagnosis system for neurodegenerative diseases in the early stages. The system uses virtual reality (VR) technology to immerse a subject in a virtual environment during functional tests designed to detect early symptoms of diseases like multiple sclerosis, Parkinson’s disease, and others. The researchers change the virtual environment parameters and record results in the subject’s movements. The technical stage of the joint project is expected to be completed in 2017.  Read on.

Sponsor please

Posted by & filed under Fundraising.

Jodie Evans, an MS member here, has set herself a personal challenge to do the Brackley novice triathlon, 200m swim, 10k bike and 3k run.

Jodie has had a tough year and the centre has helped her to meet and chat to others, she attends the swimming group once a month and has regular massage which really keeps her going! Jodie is still learning to look after her MS and this is a challenge for her to pace, train sensibly and just meet the finish line on the day without worrying about the clock!  Please sponsor her, virgin giving details below or there is a paper form at the centre:

http://uk.virginmoneygiving.com/team/teamtolmieplusone

Urgent help needed

Posted by & filed under Fundraising.

Thank you to those that collected at Sainsbury’s Didcot – Dave, Petula, Richard, Alan, Bev and Tony, you collected £312.25.  If anyone is free to collect at Tesco Metro Cowley Road this Friday let me know URGENTLY, we only have 1 collector, so really need help with this one.

Interesting article on Oxygen Therapy

Posted by & filed under MS News.

Source The Conversation.com:

There is no cure for multiple sclerosis (MS) yet. As a complex neurodegenerative disease of the brain, it is incredibly difficult to treat. Despite the development of new and sophisticated therapies to control the inflammation and physical symptoms of the disease, these treatments don’t work for everyone. This is because MS comes in many guises and one treatment does not fit all. Perhaps for this reason people with MS are turning to alternative means of controlling their condition.  Read on.

Breast cancer drug shows potential to repair myelin

Posted by & filed under MS News.

Source MS Society:

Researchers at the University of Cambridge have found a new way to repairmyelin using a well-established treatment for breast cancer.

Tamoxifen has been used to treat breast cancer since the early 1970s, but research has revealed some previously unknown benefits of the treatment. Read on.

July 100 club winners

Posted by & filed under Centre News.

July 100 club winners:

1st Tony Ball, 2nd Jill Goodall, 3rd John Day.

See Sue or Dave for details on our 100 club, great odds 😊